We are going to have a very busy month! Josh has an appointment with just about every doctor in the next 4 weeks. His first appointment is with Dr. Filloux, his neurologist. We are going to get all of his diagnosis' on paper for future reasons. His Dypraxia has not been formally put on paper yet and we need it. So because of this appointment, all of Josh's therapist have written a summary of what they see with Josh, and re-did some testing to show where he is at right now. He has made some great progress and I wanted to share it! His last Rosetta Test was 12-16-08... so it has only been just under 5 months ago. His Gross Motor skills were at 13 months, and now is at 15 months. His Fine Motor was at 14 months then, and still is. His Cognitive was at 10 months and now is at 12 months. His Language/Speech is at 8 months, there was no change there. His Self-Help was at 8 months before and is now at 12 months. His Social Emotional was at 9 months before and is now at 18 months. That is a 9 month jump in 5 months!!!! I was so happy to see that.
He also has the appointment with the Genetics department on June 3rd. I have been getting all his medical records released to them from each doctor and filling out the longest history questionaire ever!
Josh is also going to have a G-Tube placed. This is the tube that is surgically placed directly into his stomach. He has a test scheduled for next monday to make sure his upper GI tract is good and then we will get the G-Tube done sometime in the next couple of weeks. He also has an in-depth appointment with the Feeding Clinic on May 27th. So we are going to be very frequent travelers down to Primary's for the next month. Scott and I also need to take a class at Primary's about the G-tube. Fun stuff!!
So that is what is keeping me busy. Trevor and Jordan are out of school on May 29th, so we have alot of end-of-year stuff to do as well. It's going to make for the fastest month ever I think!
And in some other random fun news, Josh has finally learned how to climb onto our computer desk chair and our kitchen table chairs. He has been trying for a long time. He still is not able to go down stairs yet, but he is getting a little better... practice makes perfect!!
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6 comments:
HOORAY for the good news!!!! that is awesome! Yeay Josh!!!!
...I am sorry to hear how many trips you'll get to make.. but hopefully this will all be helpful and end up wonderful. :)
Glad to see he's progressing in some areas. That's great! Busy busy month. Good luck. Hey can you e-mail me all the days and times of when I'm babysitting. I already forgot most of them cuz I was dumb and didn't write them down...
I am glad Josh is slowly progressing. A little bit is better than none. I wish I could help with the babysitting but sorry no luck there. Good Luck with all the doctors appointments.
So how do you ever have time to do anything else?? Glad to hear he is making progress!
Oh my gosh lady! I know it gets so overwhelming!...My advise- one day at a time! Call me if you have questions about the Gtube or just need to talk. Thank you for all of your constant support. For sure we will meet up at PCMC...Funny its our meeting place! He will be going tomorrow at noon. I will keep you posted 801 638 1897
Sounds like all your hard work is paying off with Josh!! I was impressed with the picture communication boards you made, you should check with your occupation therapist and see if you could market them to help with the expenses I'm sure are adding up. Good luck with the G-tube I hope it makes life a little easier for all of you. Let me know if you have questions about it and I'll try and help.
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