Well we made it through one more test today. Josh had an upper GI Barium Series done. He did as good as can be expected. They got him to drink enough by mouth to get the esophogus part done and then put the rest through the tube. The only thing I know for sure is that his reflux is worse than we thought. The Radiologist did part of the test with his NG tube in place and then part with it out of place. He refluxed every time with the tube in place and half the time with it out. So I thought we were probably going to be able to ween him off the meds and now I find out he is not getting any better as far as the reflux is concerned. Even though we don't see anything coming out of his mouth, it is still causing some pain. So that is probably some of the reason he isn't sleeping well. Sigh.... what else is new, huh?
The hardest part was that we ended up having to take his tube totally out and rip all the tape off and replace it on the other side of his face. He was so traumatized by that, it was unreal. I feel so bad for him, it just makes me sad. But he seemed none the worse for wear tonight and was acting fine. So we'll see how well things go when we go back on wednesday for his Neurology appt. He is really starting to hate PCMC. Poor guy!
But while there I was able to have a little time to go see a friend I have met through my 'thru the tulips' blog. Her little guy is currently at PCMC and I actually met her face to face at the Radiology dept last month. So it was great to see her and I hope to have time to see them again on wednesday. At least it gives me a highlight to having to go back to PCMC this week. Thanks Jessica!
Subscribe to:
Post Comments (Atom)
8 comments:
What a trooper! Poor kiddo. :-( I hope they figure out the reflux thing fast!
Poor Josh!
I am so glad you have a friend to visit!!!
I hope you all get more sleep tonight!!
Josh has quite the little personality to bounce back like that. I am glad that there is one less test to do now and that is went relatively well. That's to bad that his reflex is still bad. I was finally able to take Ryan off his medicine and it has been nice. Hang in there guys.
It is amazing how well Jpsh is able to deal with this. He really is a special spirit!
Im so sorry that things did not go as planned. That is always a bummer! It was so good to see the 2 of you! It gets so lonely up there it was a nice treat to just sit back and talk with you. These kids definatley keep us on our toes. keep up the wonderfull parenting!
He didn't seem to happy when you came to pick up Jordan. I felt so bad. I hope he can get the G tube inserted soon and stop having that other one taped to his face.
You are doing so much for Josh. You are awesome, and he will seriously be a tough boy after going through all this junk. I would hate tape being ripped off my face too!! I bet you look forward to when he can communicate better so he can tell you what is wrong and how he feels. We are prayer for you all!
Poor kid. I hope it gets all figured out. I am also taking Dallan to a gasteroenterologist, because I suspect he has silent reflux, and that is also why he doesn't sleep well.
Post a Comment