So today was our appointment with Dr. Pfeffer, a pediatric sleep specialist. I absolutely love her! She was great and Josh even thought so since he climbed up in her lap during some of our appointment! That is not normal for Josh to do if he doesn't know the person. But she was great.
Anyway, the verdict? He definately has a problem! Ha-Ha... like I didn't know. But all kids have issues with sleeping at some point and all mom's deal with it at some point. At times I have wondered if maybe what he does is normal. But today I found out that it is very unusual, and we need to get it solved since it can lead to long-term problems. First of all, I learned alot about him personally. She was telling me about a lot of new studies that prove kids with developmental delays, preemies, and problems like Josh's have a high risk of sleep disorders. What his sleep disorder is..... is the big question.
She says her gut feeling is the wakenings are reflux related. She was surprised he hadn't had the Nissan surgery done when his G-tube was placed. So that is her biggest theory. Although she said with his neurological problems, she still wants to rule out 100% that he is not having seizures. So the first thing we are going to do is a overnight sleep study down at Primary Children's Medical Center. He will also have a full night EEG done as well then. If the EEG looks normal and they don't see any other obvious problems, he will have a 24 hr. PH Level done. This will require a 24 hr stay at Primary Children's as well. Then if that comes back with a reflux problem then she will be suggesting to his GI doctor to have him referred to the surgeon for the Nissan Surgery. I haven't talked to his GI doctor yet to let her know that Josh has been vomiting lately.
So in the meantime she gave us some Trazadone to help him sleep at night. This won't change any underlying problem going on, but should help him sleep better. We'll see.
All in all, I am very happy with our new doctor and I am glad I have finally have gotten in to get this whole sleep thing under control. Believe me... I can't function much longer on waking up every 1-2 hours at night! This has been going on for 27 months (hence how old Josh is, LOL)... so it's about time. I'll let you know how the meds work. Wish us luck!
Happy Easter! (a little late)
5 days ago