Wednesday, April 29, 2009
Anyway, that is not what I was going to blog about today though. I have something much more interesting.... at least for our household. Trevor is the subject of today.
This past monday was a meeting with the school district to determine Trevor's placement for 2nd grade. Scott and I were nervous about this since we knew it was going to be the first year he was possibly going to be somewhat mainstreamed. So we weren't surprised when that is what is going to take place. He will be put into a regular 2nd grade class with 'support'. Neither Scott, nor I, are exactly sure how we feel about this right now. He will be pulled out for resource help a few times a day, so that will be good, but I just don't know about him being in a class with 25 others students and one teacher. I just don't know what to think. At least we let them know we weren't thrilled over this idea, but they reminded us we can re-evaluate this fall. We'll see.
The team was great about helping us with some pretty big behavior issues going on with Trevor. We are actually going to get to meet again next monday to put into place some new ideas to help us at home, and to get us through the summer. I am so glad that we do have the help we do, I just don't want to backslide from where we are now.
We also had an appt with our wonderful Pediatrician today. Dr. Stevensen is a great doctor and we love him! He spent a good half hour just talking to me about what is going on and how things are going. After much thought and research, I decided that maybe some medication at this point isn't all that bad. So we decided to put Trevor on some meds to help with his aggression/anger problems for now and maybe just through the summer. It is a very low dose for now and we'll just increase in small amounts if needed. I never thought we would go this route, but we just can't keep on going this way. So we'll see what happens.
Other than that, things are the samo-samo here. We are just chugging along and waiting for some nice warm weather to get out more. Summer is coming on us fast. There is only 4 weeks of school left. Can you believe it?? Time sure flies!
Friday, April 24, 2009
Now... today I took Jordan in for his Kindergarton Physical. He did very well with all the testing. His eyes are great, his iron is good and finally there is no longer blood in his urine. He weighs a whopping 33.3 pounds which put him into the 3rd%. The doctor suggested some PediaSure to get some calories in him. We'll see about that. He was 42.5 in tall and in the 50% for that. So tall and thin. Like usual. They had us fill out a developmental questionaire with all sorts of things for Jordan to do (such as drawing, writing, ect). He was quite a bit above the average on that in every area. He is doing great!!! It is soo nice to see that for me since I don't spend the time I need to with him on those things. Thank goodness for preschool!
So, the bad news? He has Strep!!! His lymph nodes were swollen.. have been for about a month and so she wanted to do a test. I was a little surprised about that since he is acting fine. When the test came back positive, I was floored! So he has had it for awhile. Poor kid. So he didn't get his shots today (he was happy) and we will go back next week for a second strep test and shots. Yea for us!
I have included a couple pictures of Jordan at the airport this past week with the F-16's. My dad got some good pictures of him and I wanted to share!
Thursday, April 23, 2009
And after giving the braces a break about three weeks ago, look what is back.........
Yep. The braces. He was tippytoe walking so bad and both his OT and PT with Early Intervention noticed....so we had to get them back out. (although his are blue in case you are wondering!) He is doing much better, less falling ect. so it is good. But I had a hard time with it this time. I just wanted SOMETHING to be going good, or for one part of all this to be done. I know it won't be forever and he will probably just need a few more months but it was still disappointing.
After therapy we went to pick up Jordan at my friend London's house. One of the other ladies from our ward was there with her son that is only a couple weeks younger than Josh. He is such an adorable little boy and I see him in nursery every week. He was climbing all over the playset outside and having alot of fun. It must have been the mood I was in today, because it made me so sad to see Josh having a hard time walking in the backyard, not able to climb onto anything and not able to pick up the big truck they were playing with. For the first time I just felt like I had to get out of there. I don't usually have this problem since I am in nursery with Josh and other kids his age and see this all the time. But for some reason today it hit me like a load of bricks.
We are having some pretty big struggles with Trevor right now that is making me second guess everything I do as a mother. I wonder at times if I am doing the best I can be, or if I need to try harder. I know that everyone goes through this and I am no different, but I feel like I am running blindly as fast as I can and hoping I don't run off the road. There is so much about Trevor and Josh I don't know and at times I wonder if I am doing a good job. I sometimes wonder how I ended up with two special needs kids that are so dependent on me for so much.
Anyway, I didn't mean to ramble on so much. It was just one of those days that I looked at Josh and saw all the things he still needs to learn just to function in the world. It was an overwhelming day and I am glad I can go to bed tonight and wake up with a brand new start tomorrow.
Monday, April 20, 2009
Then this afternoon my dad called and told us there were some Military F-16's at the Ogden Airport. I guess one of the jets blew a tire while landing and crashed and shut the base down for landings. So they flew into Ogden Airport to wait for the base to open up. So Scott hurried and took Jordan out to see them up close, since my dad can get him on the ramp. He was sooo excited to get to see the jets that fly around all day long here... up close and touch them (his words). When they got out there one of the National Guard men let Jordan climb into the cockpit. Jordan was a little scared to go up the big ladder, but he did it. And he was so excited. All he could tell me was about the yellow lever (ejection lever) and how you aren't supposed to touch it.
Sunday, April 19, 2009
The other two are doing good. Jordan is finally getting over a cold he had that lasted for over 3 weeks. Trevor was sick recently too, but is fine now and hasn't caught anything going around in our house. He has a Field Trip tomorrow for school and is so excited to go.... so I think even if he was sick he would tell me he wasnt :)
Other than that, we have had a pretty uneventful week for the most part. This weekend the weather has turned warm and sunny so the kids were able to play outside finally. Most of next week looks very good, so maybe this week will be a better one with something more to do. Josh loves the outside and now that we can be out there, his Physical Therapist can work on some of his outside walking issues. That is one of our next hurdles we have been dealing with.
I am glad that I can finally blog about an uneventful week for the most part. Now that I am feeling better again, we can get back into the swing of things. I hope everyone (at least those of you living in Utah) get out and enjoy this gorgeous weather.
Saturday, April 11, 2009
Friday, April 10, 2009
Thursday, April 9, 2009
Saturday, April 4, 2009
Last night I was taking Rosco outside to go potty. I came back in a couple minutes later to find Josh here......
He is so funny sometimes! It is nice to see him with so much energy and happy. We love this kid!!!
Poor kid! He was sitting up and asleep. It is nice he is feeling better now!
Thursday, April 2, 2009
I am including some pictures of Trevor through the years as well.
Before Trevor was born, I didn't know much about Autism and I didn't know anyone personally that had it. I honestly had no idea of the signs or symptoms. As many of you know he was born 4 weeks early, so when he wasn't hitting his milestones on time it was just passed off as a little behind with prematurity. As he got older and things like speech and language didn't come along, we knew something was wrong. We had a wonderful pediatrician who sent us to Early Intervention at 17m to get an evaluation done. He came back delayed enough to begin speech therapy. By the time he was 2, it was clear that there was more than just a speech delay going on, and this is when the possibility of autism began. By age 3, I was 100% sure that is what he had, but it wasn't until right before his 4th birthday he was officially diagnosed. He also began the Northern Utah Autism Program the fall of 2006. He had done amazing with the help he has recieved and I don't even want to think about where we would be without all his therapy.
Being a parent of a child with autism has been a challenge, but very rewarding. I think we celebrate milestones more than most parents do, simply because we never know when, or if he will really be able to accomplish the goals.