Today we had a follow up appt with the feeding clinic down at PCMC. It is actually called the Follow Up Nutrition clinic, aka the FUN clinic. But Josh really does not think it is a FUN clinic, LOL! He screamed like you would think he was dying.... all for his weight and heighth. Nice huh? He has had a recent drop in weight, but overall he is doing great as far as nutrition. His constipation is getting worse. So after talking to his GI doctor we are going to try to get to the bottom of it. While he is already under anesthesia for his surgery, a surgeon is going to come and do a full biopsy of his colon. Then the GI doctor will do some biopsy's of his upper GI area as well. He will also have another blood work up done and she'll test for some more stuff there. He'll have his G-tube placed and go home the next day.... hopefully with some answers. We are also going to take him off dairy again and see if that, with the new formula will help at all too.
It's never an easy answer or solution with Josh. I am just glad we can time all these procedures at the same time. I will keep you posted about it all. I will post some pictures and an update on his surgery on Saturday night. Wish us all luck!
1 week ago