Wednesday, July 29, 2009

What a day!

Today we got up bright and early and headed down to Primary Children's to have Josh's Mickey Mini put in. LOL!!! Seriously it is called a mickey button and it is a mini one since he is small. LOL! OK.. so I am a weee bit tired tonight. But anyway....

We have been waiting for this day, partly to finally have it done, and because we were having enough problems with his temporary PEG tube to make anyone want to scream.

So here is our day...

This is Josh in the pre-op waiting room in his lovely hospital issued jammies. He is not happy, but if you look hard enough you can see the bubbles Scott was blowing to make him happy.




And one picture of him in the 2nd pre-op waiting room. This was after the IV was put in... and he only got off our laps this one time.


That was all the pictures from the hospital. We took him back to his OR room and was able to stay with him until he was so drugged he didn't know we left. It was kinda funny to see him so loopy. He was done in like 20 minutes and then we went back to recovery with him. He had to have Zofran again because of nausea, but other than that he couldn't get out of there fast enough. It was nice to be able to leave and not stay!
He had a couple visitors tonight to see how he was doing. Of course his grandpa came. My dad comes after every little procedure or surgery he has had to cheer him up. No wonder he loves his grandpa so much! He also likes to take his hat off and wear it on his head for a few seconds. It's a game they have been playing together for as long as I can remember. Thanks dad for coming to see him!

He finally got to take a bath!! Since his site was healing, he has only had his usual wipe down daily. Before the PEG tube, he was bathed in the sink since March because of his NG tube. So this was his first bath in the bathtub since March 22. Even though he looks drugged... he was so happy!!! Loved the smiles we got!


And finally... I am posting a before picture of what his PEG tube looked like.....


And this is his MIC mini Button. Now you can see why we were so excited to get it put in finally! He is going to wear a small dressing under it, but his Dr. showed us how to do it without taping it to his skin. You can see the rash and what his skin looks like now from the last 2 months of tape being torn off daily.


We are so excited to be done with this!!! It has been a long road, one that is not over yet, but at least we are through the healing stage. He is sore and bleeding a bit from the tube change, but this is the only time that will happen. From now on when we change the button (every 3-4 months) it will just be fast and no hurting on his part. Yea for Josh!!!

5 comments:

Tanya said...

Yeay for Josh!!! I am so happy for you guys! Hopefully this makes your days a little easier! And I know its good for him......!!!

Jessica said...

I am so glad it done with! What a strong dude! I am sorry that it has taken this long to have it placed, but you will see that life should get better... G tube wise, of course!

PS thats the button Jonah has

Chantel and Brian said...

Yea for no more night changes! I'm glad that the two long months are finally over, and that Josh was a trooper. I would have loved to see him giggly like he was. I was on the Zophran when I was pregnant with Parker for nausea. It gave me such bad headaches though that I only took it if I had to. Poor little guy's skin looks horrible! I hope that can clear up quickly.

Annie said...

I am happy to hear the good news! He is such a great little guy!

Lori said...

Wahoo!!! I know this is a hard/good thing, but YAY for him being able to take a bath. YAY for no more night time procedures and YAY for a slick day at the hospital. Big cyber high fives to you.