It really doesn't seem to ever end for Josh. I took him into his Pediatrician yesterday for several reasons. First of all, his ears are clearing up again, so it seems like for this second, we are good to go there. Then we went over the problems he is having that seem to be making life so miserable for him. His reflux seems to be getting worse, and he is medicated the max amount. He seems to have stuff coming up all day long, and some times he spits up, sometimes he can swallow it back down. But he seems to have some difficulty swallowing, and it hurts him at times. So the Ped is making an appt with a Pediatric GI doctor down at Primary's for us. (For those of you out of state, Primary Children's Medical Center is a children's hospital that has many specialties and is one of the top hospitals in the country.) Also we will maybe finally get some answers and a treatment plan for his constipation issues he has had his whole life. The Ped seems to think that the GI problems are compounding the ear problems, and once we get them under control we hopefully will see a decrease in ear infections. We can only hope, right?? Josh has also lost weight. Over the last 4 weeks he has lost 1lb 3oz total. He used to be at the 25th percentile for weight, and now is on the bottom line of the chart. So between that, and his constant fussiness and being miserable, we need to do something now. But the GI doctors are always booked out a couple months, so we may be in limbo until then. The Ped is going to personally call to make his appt to see if he can expedite the appt, but he didn't know if it would work. So until then, we will just take one day at a time, hope for the best, and keep chuggin' along.
Welcome to our blog. This blog started out as a family blog to share pictures of fun events. As life has gone on we have found our family going in a new direction, one we never thought or imagined. This is our life and how we survive raising two boys with special needs, and one sweet baby girl with challenges of her own. We love our life and wouldn't change it for anything. Thanks for visiting!
I am a full time wife and mommy and I keep very busy! I married my wonderful husband, Scott, on March 10, 2001. We have three wonderful boys, two of them have special needs and one Sweet new baby girl with her own challenges. You can usually find me helping with homework, running to and from school, keeping up with therapy for our little ones, cleaning the house.. the list will always go on! We take life here one day at a time and enjoy every moment we get.