So today was supposed to be a very low key day. Not a whole lot going on and nothing big to do. Josh must have heard me say that... and decided to give me something to do.
This morning Josh walked up to me and I noticed it didn't look like he was wearing a onesie under his sweats. I pulled up his shirt and his G-tube, or button we call it, was not there!!! Imagine the panic that came following that realization! So I ran him over the the living room floor, yelled for Scott and grabbed our emergency G-tube kit. I grab his button that is in the kit and attempted to shove it back in. It was not even CLOSE to fitting. I start to think that this could be really bad. So I start opening the catheters they put in the kit to use to keep his stoma (hole) open. The next size down won't fit and so I had to go with a smaller size. I really had to shove it in. Of course you can imagine the screaming going on. Scott decides to take a turn at trying to get his button to fit. I pull out the catheter and he tries. He says the same thing I did... there was no way that was going to fit. So we tape the small catheter back in and I call his GI doctor's office first. For the first time ever ( and we have been going to this clinic for a year now) the nurse actually answers. She puts me on hold and finds his doctor. She comes back on the line and tells me that they will squeeze us in at their office, instead of making us go through the ER. Halelujah!!! So I throw together some stuff and head to PCMC.
Once there, they pull off all this tape and put some numbing stuff on the site. We wait for 20 min. In the meantime my sis-in-law (who works at PCMC) comes to keep me company. After the numbing stuff is in effect, the Physician's Assistant comes in and takes the catheter out and proceeds to 'make' the stoma bigger so she can shove the button in. Believe it or not, Josh never even cried! His lip quivered a few times, but that was it. We got the button back in, just a little bleeding, and bandaged him up. After checking for placement we talked for a few minutes about his constipation. She was messing with his tummy and could feel it rock hard. We also talked about reflux and I found I am on the right track for some changes I have made. I will post about that later though.
So... Josh is fine, but will be sore for a day or two. Not bad to make it almost 5 months since his G-tube was placed before having a problem this big. Let's just hope it doesn't happen again!
2 days ago